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Benchmarks for Transition

The benchmarks for transition have been developed with young people, parents and professionals with the aim of improving transitional care for young people and enabling the sharing of best practice between services. The benchmarks offer an example of a ‘practice guide’ to support transitional care.

2 licensing options
BRIGHTLIGHT: Carer Questionnaire

Carer Questionnaire measuring teenage and young adult cancer caregiver unmet support and information needs

2 licensing options
BRIGHTLIGHT: Health Economics

Health economics measures for the BRIGHTLIGHT study

2 licensing options
BRIGHTLIGHT: WAVE 1

The BRIGHTLIGHT study has been carried out to evaluate how specialist services affect the success of treatment and how well young people return to normal life such as education or work after treatment. The licensed documents include the main survey, questionnaire for carers and health economic measures for use with young people aged 13 onwards.

2 licensing options
BRIGHTLIGHT: WAVE 5

The BRIGHTLIGHT study has been carried out to evaluate how specialist services affect the success of treatment and how well young people return to normal life such as education or work after treatment. The licensed documents include the main survey, questionnaire for carers and health economic measures for use with young people aged 13 onwards.

2 licensing options
BRIGHTLIGHT: WAVES 2-4

The BRIGHTLIGHT study has been carried out to evaluate how specialist services affect the success of treatment and how well young people return to normal life such as education or work after treatment. The licensed documents include the main survey, questionnaire for carers and health economic measures for use with young people aged 13 onwards.

2 licensing options
Developmental Journal Babies Visual Impairment (DJVI) OFFICIAL

The Developmental Journal for babies and young children with visual impairment is an early childhood intervention programme for babies and young children with visual disorders and severe visual impairment.

1 licensing option
Early Intervention for Childhood Eating Disorders

The licensed document comprises the therapist manual for delivering a parent group intervention for early onset eating disorders in children and adolescents.

1 licensing option
FVQ_Child (8-12 years) and FVQ_Young Person (13-18 years)

An age-appropriate measure of functional vision (FV) for self-reporting by visually impaired (VI) children and young people.

2 licensing options
FVQ_CYP (10-15 years)

An age-appropriate measure of functional vision (FV) for self-reporting by visually impaired (VI) children and young people.
GEMINI HOME ENVIRONMENT MEASURE

1 licensing option
MRI Conductivity

State-of-the-art algorithms for MRI phase-based electrical conductivity mapping

2 licensing options
MRI susceptibility calculation methods

2 licensing options
MSA-QoL

A Patient-Reported Quality of Life instrument for patients with multiple system atrophy

2 licensing options
OPTIC study normative perimetry templates

A collection of templates to aid interpretation of kinetic perimetry results in children (aged 5-15 years). Data are from the Study of Optimal Perimetric Testing In Children (OPTIC).

2 licensing options
PPP

The Paediatric Pain Profile is a pain assessment tool for non-verbal children with severe and complex disability. The tool incorporates a validated 20-item behaviour rating scale with scores ranging from 0 to 60. In early studies, scores of 14 and over have been associated with moderate or worse pain. The tool emphasises the need for partnership between parent and professional in assessing and managing children’s pain.

5 licensing options
PPP - for use by family carers

The Paediatric Pain Profile is a pain assessment tool for non-verbal children with severe and complex disability. The tool incorporates a validated 20-item behaviour rating scale with scores ranging from 0 to 60. In early studies, scores of 14 and over have been associated with moderate or worse pain. The tool emphasises the need for partnership between parent and professional in assessing and managing children’s pain. This licence covers use of PPP by family carers.

1 licensing option
PQoL Carers

A Quality of Life instrument for carers of people with parkinsonism

2 licensing options
PRAiS v3

This software can be used to apply the PRAiS risk model for death within 30 days following cardiac surgery in children using routinely collected audit data and produce a Variable Life Adjusted Display (VLAD) chart to facilitate routine monitoring of programme-level outcomes. Version 3.0 is now available - see product description for further details.

1 licensing option
PSP-QoL

PSP-QoL is a Quality of Life instrument for people with progressive supranuclear palsy

2 licensing options
The Sibling’s Views Questionnaire (SVQ)

The Sibling's Views Questionnaire (SVQ) consists of a pre-intervention and post-intervention version, and utilises a focused semi-structured interview design. The SVQ enables the interviewers to ascertain the sibling's experience of having a brother or sister with complex health care needs and to identify what the sibling needs from a support group.

2 licensing options
UCLASS

UCL Archive of Stuttered Speech

2 licensing options
VQoL_Child (8-12 years) and VQoL_Young Person (13-18 years)

A novel, psychometrically robust self-report questionnaire for children and young people that captures the day to day impact of living with impaired vision from their perspective.

2 licensing options
VQoL_CYP (10-15yrs)

A novel, psychometrically robust self-report questionnaire for children and young people - the VQoL_CYP - which captures the day to day impact of living with impaired vision from their perspective.
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