PSP-QoL is a Quality of Life instrument for people with progressive supranuclear palsy
Technology No. 97-259

The Health-Related Quality of Life questionnaire for Patients with Progressive Supranuclear Palsy

PSP-QoL is a Quality of Life instrument for people with progressive supranuclear palsy.


Progressive supranuclear palsy (PSP) is a rare and progressive condition that can cause problems with balance, movement, vision, speech and swallowing.

It's caused by increasing numbers of brain cells becoming damaged over time. The PSP Association estimates there are around 4,000 people with PSP living in the UK. However, it's thought that the true figure could be much higher, because many cases may be misdiagnosed. Most cases of PSP develop in people who are over 60 years of age.

PSP-QoL is a patient-reported outcome measure for progressive supranuclear palsy (PSP). The Supranuclear Palsy Quality of Life scale (PSP-QoL) may be a helpful patient-reported scale for clinical trials and studies in PSP.

Please note that translated versions of PSP-QoL are available for purchase. For more details, please contact us via the "Contact us" section.

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  • swap_vertical_circlelibrary_booksReferences (1)
    1. Hobart, Burn, Bower, Poon, Lang, Litvan, Lees, Quinn, Selai, Schrag (July 2006), Measuring quality of life in PSP: The PSP-QoL, Neurology, 2006;67, 39-44
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Copyright Licence - Non-Commercial Questionnaire
Copyright licence for non-commercial use only.

Term: perpetual

PSP-QoL non-exclusive licence
For use by commercial companies, including non-Government funded healthcare providers.

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