BRIGHTLIGHT: Carer Questionnaire

Carer Questionnaire measuring teenage and young adult cancer caregiver unmet support and information needs
Technology No. 02-048
BRIGHTLIGHT is a National Institute for Health Research (NIHR) funded study (RP-PG-1209-10013) evaluating whether specialist services for teenage cancer add value. Specialist teenage and young adult (TYA) cancer services were implemented in England & Wales in 2005. Anecdotally, professionals and patients say 'specialist care' is "better" for TYA cancer treatment.  The BRIGHTLIGHT study has been carried out to evaluate how specialist services affect the success of treatment and how well young people return to normal life such as education or work after treatment. 
 
The BRIGHTLIGHT study documents include the main survey, questionnaire for carers and health economic measures for use with young people aged 13 onwards.
 
For further information about BRIGHTLIGHT please see the website:www.brightlightstudy.com
 
The BRIGHTLIGHT Carer questionnaire was designed to be administered when the young person was 6 months after diagnosis and is available for licensing now.
 
CARER QUESTIONNAIRE

The Carer Questionnaire includes questions on information needs, contact with the treatment centre and healthcare professionals, the carer and relationship to the young person, and support for completing practical tasks. This is available as a paper self-report only. The questionnaire takes 10 minutes to complete.

For WAVE 1 survey materials click here.
For WAVES 2-4 survey materials click here.
For WAVE 5 survey materials click here.
For the Health Economics measures click here.
 

DOI: 10.5522/03/BRIGHTLIGHT_CQ

Creators:
Taylor, Rachel
Title: BRIGHTLIGHT: CARER QUESTIONNAIRE
Publisher: UCLB
Year of publication: 2018
DOI Dataset: The dataset contains individual pdf:
BRIGHTLIGHT Carer questionnaire
  • swap_vertical_circlelibrary_booksReferences (1)
    1. Whelan, Pearce, Feltbower, Stark, Raine, Barber, Gibson, Frere-Smith, Jeans, Pye, Carluccio, Hooker, Solanki, Fern, Taylor (28/07/2015), Development and validation of the BRIGHTLIGHT Survey, a patient-reported experience measure for young people with cancer, Health and Quality of Life Outcomes, 13, 107
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    BRIGHTLIGHT Carer Questionnaire *
    BRIGHTLIGHT Carer Questionnaire.pdf
    size: 376 KB, type: application/pdf
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Licence - Other Use
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Term: perpetual

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BRIGHTLIGHT_2018 Licence: Non-commercial Use
For use by academic, charitable or other not-for-profit organisations only.

Term: 36 months

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