BRIGHTLIGHT is a National Institute for Health Research (NIHR) funded study (RP-PG-1209-10013) evaluating whether specialist services for teenage cancer add value. Specialist teenage and young adult (TYA) cancer services were implemented in England & Wales in 2005. Anecdotally, professionals and patients say 'specialist care' is "better" for TYA cancer treatment. The BRIGHTLIGHT study has been carried out to evaluate how specialist services affect the success of treatment and how well young people return to normal life such as education or work after treatment.
The BRIGHTLIGHT study documents include the main survey, questionnaire for carers and health economic measures for use with young people aged 13 onwards.
The BRIGHTLIGHT Carer questionnaire was designed to be administered when the young person was 6 months after diagnosis and is available for licensing now.
The Carer Questionnaire includes questions on information needs, contact with the treatment centre and healthcare professionals, the carer and relationship to the young person, and support for completing practical tasks. This is available as a paper self-report only. The questionnaire takes 10 minutes to complete.