PSP-QoL is a Quality of Life instrument for people with progressive supranuclear palsy.
Progressive supranuclear palsy (PSP) is a rare and progressive condition that can cause problems with balance, movement, vision, speech and swallowing.
It's caused by increasing numbers of brain cells becoming damaged over time. The PSP Association estimates there are around 4,000 people with PSP living in the UK. However, it's thought that the true figure could be much higher, because many cases may be misdiagnosed. Most cases of PSP develop in people who are over 60 years of age.
PSP-QoL is a patient-reported outcome measure for progressive supranuclear palsy (PSP). The Supranuclear Palsy Quality of Life scale (PSP-QoL) may be a helpful patient-reported scale for clinical trials and studies in PSP.
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File description:Measuring quality of life in PSP: The PSP-QoL. Neurology 2006;67;39-44.
File name:PSP-QoL paper.pdf
File size:314.50 KB
File description:The Health-Related Quality of Life questionnaire for Patients with Progressive Supranuclear Palsy (PSP-QoL)